A wise man once said the best death is
an unexpected death. On the other hand there are advantages to
having some time to prepare, allowing all the loose ends we generate
throughout our lives to be resolved. But I've run into an obstacle.
Having been given some time prepare I have been slowly moving through
my list, contacting friends, resolving old issues, and of course
doing the paperwork. When I was admitted to the hospital I made it clear to the colorectal surgeon that
I was interested in quality not quantity, he disagreed, saying he
wished I would do more. His opinion but not mine. The most telling
sign that my position had validity was the diversional colostomy
which did not touch the primary tumor except for biopsy. If it was
so important to go full bore in treating this thing then why was the
tumor left in place. Well it's simple, the tumor had spread to my
liver, lungs, spine, and omentum so removing the primary tumor had
little benefit and exposed me to a much longer surgical procedure.
The next medical professional was the oncologist. Upon our initial
meeting I also made it clear that my long term goals were quality not
quantity. The 5 year survival stats are less than 10% and the
survival curve, with treatment, was not encouraging with 50% survival
after 1 year for stage 4 colon cancer. He made a strong argument for
palliative chemotherapy. He gave 80% confidence that I would see
some improvement and extend my life. What he neglected to mention
was that after chemotherapy became ineffective I would still go
through the possibly messy end stages. So really it is a choice about
time (quantity and not quality). This confusion between quality and
quantity in the minds of medical professionals is understandable,
they mostly deal with families, with often differing and conflicting
needs so quantity could easily be equated with quality in families
seeking to extract the absolute maximum amount of time with a loved
one. He made the same argument at our first office appointment, saying 59 was to young to die, but since all the possible medical intervention he can muster would not give me an average lifespan or even a median lifespan. When
I pointed out that this was essentially a quantity argument he quite
looking at me and physically turned to my sister and began
addressing her as if she would convince me to follow his plan. But he
did not know was that my sister has also walked the cancer path with
leukemia. And in typical Thompson fashion she did not tell anyone
until she well into chemotherapy. She completely supports my
position having been down this road herself. Her only question was
“would he (the oncologist) sign the death certificate so the corner would not have
to do an autopsy”, to which he replied yes. I told the oncologist
that I would consider his arguments again and let him know my
decision by the end of the day. After stopping for some Chick-fil-A
we headed back to the farm. I ate and then slept for several hours
and upon rising from my nap was still comfortable with my decision
and called his office and let one of nurses know my decision and
asking for a belly line so I can drain acities from my belly. So,
the next step is done. It is off to the lawyer tomorrow, then the
local Episcopal Priest to get aquainted so the funeral, for the
benefit of my mother, will have some substance.
As a final observation, I finally had a poo through the new colostomy, but you know it's just not the same feeling of goodness and relief. A good poo, the old fashioned way, is orders of magnitude more satisfying.
As a final observation, I finally had a poo through the new colostomy, but you know it's just not the same feeling of goodness and relief. A good poo, the old fashioned way, is orders of magnitude more satisfying.
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ReplyDelete59 does seem too young but it IS your decision, quality versus quantity! Bless Beth!
ReplyDeletePat, if they could offer an average or even median lifespan then I would consider it. But with a 5 year survival rate of a couple percent it means I would only reach a maximum of 64, still to early in my mind. So I'll play the hand I was delt
DeleteI also want to thank you for the card from everyone in the Portal Rodeo Hiking Club. Please rely my best wishes and tell everyone I miss the weekly hikes.
DeleteHugs for you 😘
ReplyDeleteThank you DiAnn. Oncologist visit done and saw the lawyer today. Still looking for paperwork that needs to go to him.
Deletetoday (and yesterday) the Uber hikers are doing a backpacking trip in the Gila Wilderness. I and Roger McKasson will walk over here instead. Craig McE may join us. I'll no doubt hike next week with the group as Carol will be back and she and I can do a slower option than those mountain goats, ha ha ha.
ReplyDeleteI'll pass on your thanks next week.
Sounds like a fun trip. I was generally slower than most others since I was always looking for photo opportunities. Have fun.
ReplyDelete