I expected it would start at some point
but didn't know when. While I like to consider myself a rational
thoughtful human there is an emotional component to my personality
and it kicked in today, the emotions were not to be denied. While
speaking with the hospice nurse I completely broke down. Lots of
tears and uncontrolled sobbing while I was trying to relay
information to the nurse. She came over and cradled my head and let
me cry (even writing down the experience now leaves me teary eyed).
Just that simple act of kindness though makes this transition to hospice worthwhile. While not avoiding the emotional aspects of my personality I prefer
to maintain some control but all the news, decision making, and
adaption to a new lifestyle caught up with me and kicked me in the
butt. I felt kinda like if I cried enough somehow all of this would
magically go away but like everything else on this new adventure I'm
along for the ride and have to acknowledge that I'm going to
experience a variety of emotions but uncontrolled sobbing is way
down on my list of fun. I eventually regained some semblance of
control and after our meeting the nurse called the hospice medical
director with her observations and recommendations and the liquid
morphine prescription was filled that afternoon. Clearly these folks
know how to get things done in a timely fashion for which I'm
extremely grateful.
I guess I'm in a bargaining phase where wild thoughts come to me uninvited that somehow all this will disappear or it is an incorrect diagnosis, but I've seen the lab results and images myself, I know what is in my gut but it doesn't deter the wild thoughts that pop into my head. I find these thoughts suddenly emerging, unbidden, grasping at any threads of hope somewhat disturbing. Intellectually, I know the outcome but the more primal emotional aspects of my personality refuses to accept the situation. The key for me is to first acknowledge the thoughts but to put them aside and get on with what I was doing. I suspect it is all a control issue and as I've observed, everyone (including myself) believes they rule the world.
I also got the results of the last
ultrasound scan (Friday mornings scan looking for ascites fluid in my belly) this afternoon and there is now
evidence if disease in my spleen. Since the spleen appeared normal
on the first ultrasound as well as the CT scan done in Springfield, it would appear this is moving fairly
quickly. Although I've finally bounced back from surgery (yea my colon started working again) and feel better much of the time, it is still surprising how rapidly things can change, one minute I feel fine and the next not so good. So I guess I have to balance both the emotional and physical roller coaster from this point onward.
The psychological aspects to this
journey are surprising to me and I suspect I will be learning more as I
progress along this path. As a male I do have the y chromosome linked emotion suppressor gene which has functioned quite well so far, but now not so good. And promise to keep folks updated on what I find as things continue to evolve.
Octillo in bloom |
A beautiful picture of a octillo in the valley, you did such a great job to make the pained pony what it is today!
ReplyDeleteThank you, I hope it continues to grow and prosper.
DeleteI looked at the Gypsy Carpenters blog today and saw DiAnn and Bruce and Burt in a photo from New Mexico. Funny to see that there as top photo.
ReplyDeleteThe emotional roller coaster seems as if that would hit anyone and everyone. It is very brave and gracious of you to share with us.
It helps me concentrate on the "big picture" rather than getting all tied up in "little picture" aspects of the disease and I find it a cathartic release to write things down.
ReplyDelete