Its his Sister. For those who wait, we can feel you. Time has been precious and cruel. The earth suit is failing and the ability to type and express thoughts currently exceeds his capabilities. I keep waiting for one of those beautiful "rallies". One where he is standing at the kitchen counter eating a cinnamon roll with a sparkle in those blue eyes. He seems fairly comfortable though the physical ravages are obvious. When he's sleeping, which is a lot, I like to think he soaring through the desert and those mountains in his ultra lite. I picture him safe, healthy and strong in that "bubble". In the meantime, we are with him.
I'll update here as I can. I find strength in his readers.